Fostering European political unity for cancer and rare diseases

The European Parliament Intergroup for Cancer and Rare Diseases hosted its constitutive meeting on 4 February 2025 at the European Parliament in Brussels

A Major Initiative

The Intergroup on Cancer and Rare Diseases is established for the European Parliament term 2024-2029 to ensure that the unmet needs of the concerned populations are addressed. In order to achieve its objectives, the Intergroup will organise and promote a variety of initiatives on key topics that are in line with its policy priorities and will advance the dialogue on the needs of people living with cancer and rare diseases.  

The Intergroup will build on the European Parliament’s political action and commitment, as well as broader EU initiatives like Europe’s Beating Cancer Plan, the EU Joint Action on Rare Cancers and the EU Joint Action on Rare Diseases. These efforts have prioritised cancer and rare diseases in the health agenda, highlighting the specific needs of those affected by cancer and rare diseases.  

A continued focus on the cancer and rare disease agenda of the EU, which takes into the consideration the specificities of all population groups, will be fostered through the activities of the Intergroup.  

Intergroup Co-Chairs

  • Vlad Voiculescu MEP

    Co-Chair, Intergroup on Cancer and Rare Diseases

  • Stine Bosse MEP

    Co-Chair, Intergroup on Cancer and Rare Diseases

  • Tilly Metz MEP

    Co-Chair, Intergroup on Cancer and Rare Diseases

  • Alessandra Moretti MEP

    Co-Chair, Intergroup on Cancer and Rare Diseases

  • Tomislav Sokol MEP

    Co-Chair, Intergroup on Cancer and Rare Diseases

More on membership

Intergroup Secretariat

The European Cancer Organisation (ECO) is a not-for-profit federation of 41 Member Societies working in cancer at a European level, together with 21 European Patient Advisory Committee members. The Organisation is dedicated to convening oncology professionals and patients to agree on policy, advocate for positive change, and speak for the European cancer community.

EURORDIS-Rare Diseases Europe is a unique non-profit alliance of over 1,000 rare disease organisations from 74 countries, working to improve the lives of 30 million people living with a rare disease in Europe. By connecting people, families, and rare disease groups, and uniting all stakeholders, EURORDIS amplifies the patient voice and shapes research, policies, and services.

The European Society for Paediatric Oncology (SIOP Europe or SIOPE) is the only pan-European organisation representing all professionals working in the field of childhood cancers. With more than 2,800 members across 35 countries, SIOP Europe is leading the way to ensure the best possible care and outcomes for all children and adolescents with cancer in Europe.